Silas was four months old when his mom, Amanda, noticed his breathing changed. A quick trip to the pediatrician turned into a life flight to Children’s Healthcare of Atlanta – Egleston. Silas was immediately sedated, placed on a ventilator and diagnosed with mitochondrial dilated cardiomyopathy, a serious heart condition. A scary time for the Huffman family was made even more stressful since Amanda’s husband, Chris, the base guitarist for Casting Crowns, was in Alabama preparing for a concert when this rollercoaster began. Chris immediately returned home so he could be with his family.
Weeks turned into months and Silas was placed on a Berlin Heart Pump EXCOR –which is used when the natural heart is unable to maintain normal blood flows or if it cannot adequately provide oxygenated blood to the vital organs. About three months later, Silas received his life-saving heart transplant. “Thank you doesn’t seem like enough,” says Amanda, “I don’t know his donor family, but their child is a part of my child so that makes them my family.”
Silas just celebrated his third anniversary of his transplant in early December. He enjoys being a toddler who loves to play with his Lightning McQueen or Thomas the Train. Silas is no longer dependent on his feeding tube for food, but only requires it for supplement fluids – a remarkable accomplishment! Amanda says, “Silas is doing amazing. He is always laughing, running around and just being a toddler. He is such a blessing.”